My Little Pie

My Little Pie

Wednesday, 16 April 2014

Broccoli

Iyla is on day 6 of broccoli and things seem to be improving and not getting worse. YAY!! The first few days there was some sleep trouble and grumpiness but that went away and she is sleeping great and is really happy all day long. There has been lots of explosive, mucousy, instant butt burning poop. But as the days go by this seems to be getting better. Yesterday and today her poo has still been horrible but not half as much mucous. It actually seems like her body may be building up a tolerance to broccoli which is awesome! Iyla is loving it too and gets so excited when i put her in her highchair to be fed. We are sticking to 4tsp a day until her poo is normal again then we will increase slowly. Hoping and praying it continues to go well!!!

 Miss broccoli face!

Monday, 7 April 2014

Cauliflower = FAIL

Although it was only a mild reaction, we aren't going to try cauliflower again. The reaction was the same as last time. It was a bit over 2hrs this time when she vomiting but it was bigger then the first one. All over her carseat. She wasn't really unhappy, but obviously not her usual happy self. She went off bottles again for 8hrs but the worst was over within 4hrs. She vomited again in her sleep during the night but didn't do any screaming. She didn't get any rash this time but i think that is because last time she rubbed a lot of it over her face. This time she ate it all.

Now for a few days break and then to try figure out what food to try next.

Sunday, 6 April 2014

Mild reaction, now retrialing

On Friday Iyla seemed to have a mild reaction to the cauliflower. I fed her early in the morning when we all had breakfast and just under 2hrs later she did a small vomit and started crying and nothing made her happy. She also got red around her eyes and the skin was slightly swollen. We had to take Connor to school and she vomited again in the car on the way home. But then fell asleep and was much happier when she woke up. That night she screamed herself to sleep in my arms and woke up 3 times during the night screaming. The next morning she did one horrible poo. Our dietician wanted us to give her a few days break and then retrial just to make sure it really was the cauliflower and not something she may have picked up off the floor. I gave her 1/4 of a teaspoon at 12.30 today so we'll see what happens in two hours time.

Thursday, 3 April 2014

Cauliflower trial

So this morning I decided it was time to start feeding Iyla some cauliflower. Like usual she started with 1/4 of a teaspoon. She LOVED it! It was so cute and really really hard for me not to feed her more. She was really happy all day but did do a bit of screaming this evening and lots of painful refluxy burps. We'll see how she goes. Please pray her body wont reject this food!!


Tuesday, 1 April 2014

Teeth torture!

Teething has been causing some major drama in this household over the last few days. Iyla is cutting her two middle top teeth and with random fevers, and lots of random screaming and some very late nights she is making us wish they would just hurry up!! We are ready to start a new food as her drinking is back to normal, she has gained her weight back and her poop is also normal. But we need to wait for these teeth so that we don't confuse the pain from that with a possible mild/build up type reaction. Our plan for the next food is to try cauliflower. We have a list of foods to try first that are most popular passes with kids with FPIES. A vegetable is what the dietician wants us to try next, so we got all the vegetables on that list and did the muscle testing with them. Out of tomato, carrot, spinach, broccoli and cauliflower the last three on the list tested good. We thought cauliflower would be the nicest tasting so will go with that first. Praying hard that she will tolerate it! I'll update when we start.

Tuesday, 18 March 2014

Back to square one...sigh

Since Iyla's reaction two Sunday's ago her gut still isn't completely healed. She is happier and sleeping better thankfully but she is still doing random mucousy poos and even just a tiny suck on an apple caused reflux, lots of spit up and trouble sleeping. So it seems we are back to no safe foods for now. Iyla has also lost 300grams and it is still a struggle to get her to drink much. It is getting better but we are only managing to get her to drink 600-800ml in a 24hr period. Not really enough when she isn't eating anything. 

The plan now is to give her a full 2 weeks of gut rest and then trial a vegetable and leave the apple and pear for now. Hopefully we can keep her away from food on the floor during this time so we can all have a few enjoyable weeks.

Tuesday, 11 March 2014

Sleepless nights SUCK!!

Just when you think life is pretty good and things are cruising along nicely Iyla has another reaction and we are back to square one.
Sunday morning we started feeding her pear and Sunday night she had a pretty bad reaction with lots of vomiting and not much sleep. I don't think it was the pear though, it was too late after feeding her for her to have had such a bad reaction. I'm guessing she must have picked up something off the floor. I really hate not knowing what it was, especially seeing how badly she reacted to it. As far as i know none of her worst foods were eaten by anyone that day so obviously she has another one.
 

Since Sunday night we have barely managed to get Iyla to drink any formula or eat any food. Yesterday got a bit stressful when she went more then 15hrs without anything at all!! We ended up having to get very forceful and hold her down to force fluids into her. It was pretty horrible but we really wanted to avoid a trip to the hospital, having a drip put in would be worse. Over a few hours we managed to get her to drink 160ml of formula. Then last night when i woke her for a dream feed she drank 240ml. I was so happy to get her finally drinking something again. 

We still had another horrible night of screaming though so over the past 3 nights i have probably only gotten 6-7hrs sleep all up. I was sick with a horrible cold just before Iyla's reaction and the coughing and sore throat kept me awake for a few nights too. I really don't know how i coped with only a few hours of sleep a night for 8 months when Abbey was a baby. I am so exhausted now just from a week of it! I'm really hoping for a decent sleep tonight. Iyla is drinking properly again so that is a good sign that she is starting to feel better.

We will start trialing pear again when Iyla has a few days of being completely back to her happy self.